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Ruth DeSouza » Culture and health

Culture, religion and health

This page was named bookmark of the month for July by the Centre for Health Assets Australasia July newsletter (pdf)

Working effectively with diversity in health and social services

Health care professionals are becoming more concerned about how to provide care for diverse groups. In addition the health workforce is becoming increasingly diverse (see page about migrant nurses). My particular interest is in those who are religiously and culturally different, but some of the concerns below could also be relevant for people who are marginalised because of their sexuality, disability, mental illness, age socio-economic status and gender.

This page has the following sections

These pages have relevant links:

Access to Health and Determinants of health

Links
Social determinants of health. A background paper prepared for the Commission on Social Determinants of Health WHO, March 2005
The Center for the Advancement of Health Disparities Research
PAN - The People's Advocacy Network. An independent advocacy organisation that provides resources and training for disenfranchised groups. They specialise in non-verbal communication.

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Aging

Links
Journals on aging

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Alcohol and drugs

Links
Nafas

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Bibliographies and resources

Some useful bibliographies

Links
"CulturedMed" at the Peter J.Cayan Library at SUNYIT is a web site and a resource center of print materials promoting culturally-competent health care for refugees and immigrants.
INFLUENCE OF COMMUNITY FACTORS ON HEALTH (US) An Annotated Bibliography which provides insight into the findings of US researchers who have investigated community effects on health, and the program and policy implications that can be drawn from their work. Developed by PolicyLink, and funded by The California Endowment, this annotated bibliography contains summaries of over 150 articles, reports, and books on how environmental, social, and economic conditions of community life affect health.
Diversity Health Institute Clearinghouse is now online. The Clearinghouse is a central access point for Australian multicultural health information

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Children

These are papers from the Australasian Conference on Child Abuse and Neglect (ACCAN) held this year that deal specifically with migrant and refugee children

Links
Settling In programme:.A pilot programme administered by Family and Community Services, a service of the Ministry of Social Development.  It is a community development programme that works in collaboration with refugee and migrant communities in New Zealand to develop and deliver social services identified as being need by those communities. 
ON TRACC: An intersectoral and transcultural service for children and young people from refugee backgrounds. You can also read an article about the project in Issue 31 - August 2005 of Social Work Now Download PDF (2.6MB) by Peter Shaw, Jessie Henderson and Kathy Fielding.
Enabling a child to grow is everyone's concern but the power of the mother is significant by Koos Mohamed Ali
Child protection issues and ethnic groups Bibliography housed in the National Child Protection Clearinghouse, which operates from the Australian Institute of Family Studies

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Cultural competence

Links
Guidelines for Cultural Competence in Physiotherapy Education and Practice in Aotearoa/New Zealand
Cultural Competence links
Center for Effective Collaboration and Practice
National Center for Cultural Competence (NCCC)
CIRRIE - Center for International Rehabilitation Research Information and Exchange

Office of Minority Health: Center for Linguistic and Cultural Competence in Health Care

Assuring Medical Practitioners' Cultural Competence 
Analysis of Feedback on the Discussion Document ‘Assuring Medical Practitioners’ Cultural Competence

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Cultural safety

In New Zealand, the term cultural safety is used to signify the "obligation of the professional to practice safely" and consists of both a conceptual framework for understanding power inequalities structuring the relationships between Tangata Whenua and mainly Pakeha health professionals and practical strategies that can be utilised. The Treaty of Waitangi is seen as pivotal to its application as a negotiation tool for resource allocation for Maori. Cultural safety education has been a compulsory part of nursing education for the last ten years. Little is known of how cultural safety education in nursing translates into safe care for migrants in New Zealand because the focus has been largely on the partnership between nurses and Maori.

NZ Links
Cultural safety, a link to Irihapeti Ramsden's Masters thesis
Cultural Safety in Aotearoa New Zealand Edited by Dianne Wepa.(2005) Pearson Education New Zealand, Auckland ISBN 1 877258 75 X. I contributed a chapter about migrants and refugees.
Read a review of Cultural Safety in Aotearoa New Zealand (Ed) Dianne Wepa by Don Gorman in the Contemporary Nurse
An article by Noel O'Hare in the Listener about cultural safety called "Put yourself in my shoes: An understanding of the patient's culture may be necessary to find the best treatment" New Zealand Listener. May 22nd-28th 2004
The unfriendly isles: Why do we make life so hard for our immigrants and refugees?New Zealand Listener, August 28-September 3rd 2004, 195 (3355)
Nursing Council of New Zealand, ‘Cultural Safety, the Treaty of Waitangi, and Maori Health in Nursing and Midwifery, Education and Practice’, March 2002
Maori-Pakeha Health Disparities Can Treaty Settlements Reverse the Impacts of Racism? Prepared by Camara Jones September 1999

 

International Links
Cultural safety and cultural competence in health care and nursing: an Australian study (RMIT) by Professor Megan-Jane Johnstone and Adjunct Professor Olga Kanitsaki

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Culture and health links

Links to international Culture and health resources
Transcultural and Multicultural Health Links
Culture matching
Research Centre for Transcultural Studies in Health
Multicultural Mental Health Australia
Transcultural Nursing: Basic Concepts & Case Studies
Transcultural C.A.R.E Associates
ESRC Centre for Evidence in Ethnicity, Health and Diversity
Child and Youth Health South Australia
Healthy South Australia: Multicultural health
The SUNY Institute of Technology library is the home of "CulturedMed", a web site promoting culturally-competent health care for refugees and immigrants.
Transcultural Nursing Society
Center for Immigrant Health New York University School of Medicine
The EthnoMed site (Ethnic medicine information from Harborview Medical Center)
American College of Physicians-cultural competence.
The Global Diversity Search Engine
Transcultural Nursing and Healthcare Association UK (TCNHA)
Centre for Culture and Health The University of New South Wales UNSW Sydney NSW 2052 Australia
Anti-Racist Social Work
Centre for Culture and Health The University of New South Wales UNSW Sydney NSW 2052 Australia
Health and Human Rights
International Student Health Resource
Beginners Guide to the New Zealand Health System (Waitemata Health)
The EthnoMed site contains information about cultural beliefs, medical issues and other related issues pertinent to the health care of recent immigrants to Seattle or the US
The Office of Minority Health (OMH)

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Culture-Health-Ireland

An email discussion group for researchers and practitioners interested in the field of culture and health care in Ireland The aim of this email discussion list is to bring together researchers and practitioners from a range of disciplines interested in the relationship between culture and health care in Ireland and abroad. The list is multi-disciplinary and multi-sectoral and includes a variety of institutions and sectors. Bibliographies and contact information

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Disability

Some useful resources on disability:

Links
Office for Disability Issues
New Zealand Disability Strategy
Health and Disability Commissioner
DPA NZ - The National Assembly of People with Disabilities
Weka is New Zealand's disability information web site, for people with disabilities, their families, whanau and caregivers, health professionals and disability information providers.
SPELD NZ, the Specific Learning Disabilities Federation
Disabilities - Statistics New Zealand
IHC New Zealand
Living with Disability in New Zealand is the most comprehensive report ever produced on the status of people with disability in New Zealand
New Zealand Ministry of Health : information about Disability
The NZ Journal of Disability Studies
New Zealand Literacy Portal - Learning Disability - New Zealand
Study and Work in New Zealand for People with Disabilities
Maori language survey & disability survey - Statistics New Zealand

The Multicultural Disability Advocacy Association of NSW (MDAA) is the peak agency for people from a non-English speaking background (NESB) with disability and their families/carers in NSW.

Working with People with Disabilities: An Indian Perspective by Priya E. Pinto, MS, MSW and Nupur Sahur

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Ethnicity data collection

Accurate data monitoring of the experiences of groups is critical for successful policy and programme intervention. Reliable ethnicity data are needed as New Zealand becomes more ethnically diverse and some groups are uncounted or undercounted. Maori have been frustrated by the inefficiencies, inconsistencies, and general lack of responsiveness of current health information systems. Maori models of health emphasise the importance of integrating information about health with the wider social and economic context. Current health information systems are fragmented, however, with different providers using different standards and IT systems that impede - rather than facilitate - the integration of health care. The ethnicity definition used by different agencies and providers is inconsistent, so the data produced is poor. Gaps in data collections hinder sound analysis, policy and strategy development, and decision-making. Data - anonymous or not - has enormous spiritual and cultural significance for Maori , so may require more attention and protection than generally given.

 

Ethnicity Data Collection Links
Human Resource Guidance: EEO Data in the Public Service
Collection of Patient Ethnicity Data: A Challenge for General Practice Deborah McLeod
Information about Ethnicity from NZHIS
Waitemata District Health Board Ethnicity Data Collection Baseline Report
Review of the Measurement of Ethnicity, Statistics New Zealand - Te Tari Tatau
Review of the measurement of ethnicity newsletter
Treaty of Waitangi Implications of Health Information
Ethnicity and Resource Use in General Practice in West Auckland by Barry Gribben
Review of the Measurement of Ethnicity - David R. Thomas
Ethnic Affairs submission on ethnicity measurement
Submission of the Human Rights Commission on: The Review of the Measurement of Ethnicity To Statistics New Zealand
ACC's commitment to injury prevention for Maori and Pacific peoples
The allocation of ethnicity to children in New Zealand: Some descriptive data from the 2001 census by Paul Callister
Ethnicity measures, intermarriage and social policy by Paul Callister

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Faith Communities

There is a need to recognise the importance of faith as a marker of self-identity. Debate is rife about whether there should be faith centred health and social policy initiatives to improve health outcomes for faith communities, who have been shown to experience health inequalities (for example Muslims in the United Kingdom). While, there have been developments to address inequalities experienced by minority ethnic communities, some would argue that religious discrimination is equally significant and should not be denied..

Links
Muslim Health network
The Muslim Public Affairs Council is a public service agency working for the civil rights of American Muslims, for the integration of Islam into American pluralism, and for a positive, constructive relationship between American Muslims and their representatives.
The Muslim Canadian Congress is a grassroots organization that provides a voice to Muslims who are not represented by existing organizations; organizations that are either sectarian or ethnocentric, largely authoritarian, and influenced by a fear of modernity and an aversion to joy.
MPACUK is the UK's Leading Muslim civil liberties group, empowering Muslims to focus on non-violent Jihad and political activism
Canadian Islamic Congress

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Migrant News columns

I became a columnist for the Migrant News in 2005 and have been writing about health issues to do with migrants. You can read the columns when you pick up the free newspaper at your local distributor and read my column by clicking on these links (each issue is a pdf document and is around 70 Kb):

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Online journals

Online journals
The Irish Migration, Race and Social Transformation Review(IMRSTR) is a new inter-university peer reviewed online journal on migration, 'race' and racism in Ireland .

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Refugee Health

There are 9.6 million refugees in the world and about 11 million displaced people in need of protection and help (UNHCR, 2003) and 1% of the people in the world are refugees or displaced persons. Over 80% of all refugees are in developing countries. Migrants make up less than 3% of the world’s population but the world’s migrant stock increased by 75 million between 1980 and 2000. Europe ’s migrant numbers rose by 11 million to 33 million between 1980 and 2000. The US foreign born population grew from 14 million to 35 million between 1980 and 2000. One in every 15 people in Europe and one in every 8 in the US was born overseas. In the developed world migration accounts for a greater share of population increase than natural growth ( La Guardia, 2005). , most recently, I have become interested in whether health care workers should we focus on war and trauma or the more mundane everyday aspects of resettlement? (Grønseth, 2006). Many argue that perceived social support from the migrant's ethnic community, pre-migration trauma, family status and gender are associated with mental health outcomes (Schweitzer, Melville, Steel & Lacherez, 2006) rather than trauma.Laban (2005) suggests that mental health workers should recognize the impact of post-migration living problems and consider focusing treatment on coping with these problems instead of traumas from the past (Laban, 2005).Summerfield suggests that there is little acknowledgment to the role of social action and empowerment in promoting mental health and that survivors first seek to regain a measure of dignity and control over their environment and then to reconstitute the cultural, social, and economic institutions and activities that make sense to them. Summerfield asks whether a relentless and intrusive insistence on talking about what has happened ie ventilation and catharsis always best. Or is the delivery of adequate nutrition and general health care, decent accommodation, language tuition, safety from xenophobic violence and training for jobs? Is it useful to have one’s experiences professionalised and pathologised?

Links
Refugee voices (explores the resettlement experiences of refugees who have come to New Zealand over a six-year period)
A Cry For Help: Refugee Mental Health In The United States
Refugee health (Auckland Public health)
Information for refugees on Primary Health Organisations in NZ (Includes translations)
Refugees as Survivors Wellington (RAS provides mental health services for refugees and migrants)
Refugee and Migrant Services
The Health of asylum seekers screened by Auckland Public Health in 1999 and 2000 (The New Zealand Medical Journal) Approximately 1500 to 1800 applications for refugee status are made to the New Zealand Immigration Service each year. Approximately one third of these asylum seekers receive health screening from Auckland Public Health. We report here key findings from this screening programme for the period 1999 to 2000.
Refugee Health Care: A Handbook for Health Professionals,
WRAP - Supporting the Mental Wellbeing of Migrants and Refugees in the Auckland area
Special Health Issues for Newcomers from Settlement.org in Toronto , Canada.

Ingleby, D. (ed.) (2005) Forced migration and mental health: rethinking the care of refugees and displaced persons. (Internatio­nal and Cultural Psychology Series), New York, Nov 2004, Springer

Usefulness and validity of post-traumatic stress disorder as a psychiatric category Gillian Mezey and Ian Robbins,
Refugee & Asylum Seeker Health Resource Centre from the RAGPC site
The Refugee Communities History Project has recorded the life stories of over 150 people who came to London as refugees over the last 50 years, with a particular view to highlighting the enormous contribution that people from refugee backgrounds make to the city.

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Sexual health

Some useful resources on sexual health

Links
Safe Zone Project is designed to educate students, staff faculty, and administrators about the experience, concerns, and issues of gay, lesbian, bisexual, and trans members of our community.
XTRIBE part of Sex Cultures Online Communities Project.
Auckland Queer Asian Support Society (AQUASS)
The National Institute of Public Health in Sweden. Languages covered are: Albanian, Arabic, English, Finnish, French, Croatian, Russian, Persian, Somalian, Spanish, Swedish, Thai, Turkish.

he literature has many suggestions about how health providers can work effectively with culturally diverse populations. Health care services need to be both universal, treating people equally and particular by responding to people's different needs differently in order to be equitable (Fuller, 1997). Strategies need to range from individual, structural, universal and particular, culturally sensitive and anti-racist. Change strategies need to be directed both to the care given to the consumer as well as to the operation of health services, as care locked within a biomedical and assimilationist model of health care will continue to impact negatively on consumers.

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Support workers or cultural mediators

The evolution of a new professional group known as Mental Health Support Workers (MHSW) in the last few years with little formal training or qualifications, has raised concerns within the mental health workforce. Three reasons for the development of their role have been firstly that support workers fill the gaps in community care, particularly in terms of work with clients with complex needs not met within the current mental health system (Davies, Harris, Roberts, Mannion, McCosker & Anderson, 1996). Secondly, they have a recovery philosophy and meet the social needs of consumers, which are largely ignored by clinical mental health services. Finally, reports identify a paucity of culturally safe services for Maori and Pacific people. There is a need for more trained mental health workers before culturally appropriate services can be provided by mainstream and kaupapa Maori mental health services (Ministry of Health, 1997, Te Puni Kokiri,1993). National objectives in this document recommend the education of consumers as providers, community support workers and Maori and Pacific Island workers, which has led to the development of the National Certificate in Mental Health (Mental Health Support Work). There is also a term called cultural mediation where a cultural mediator or support worker, "facilitates communication when misunderstandings or conflicts due to cultural and linguistic differences pose actual or potential barriers between people of different backgrounds and service providers" (Access Ireland)

NZ Links
To read more about support workers in mental health follow the link to an article I've written: Improving collaboration
Read about the Access Ireland Cultural Mediation Project
Cultural mediation by Grebe Consulting

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Translation help

These have been collated by Frankie Luxmoore-Peake, Health Promotion Library Manager, Brighton and Hove City Primary Care Trust and I've added some more.

Links
24 Languages - health information in multiple languages
ACS - American Cancer Society - Asian Language Materials
AltaVista - Translate box for your site
Asthma - Translated patient information
Asthma UK - Multilingual advice service
Bullying - DfES Don't Suffer in Silence
CancerBACUP Cancer in your language
Destigmatize - anxiety disorders
DfES, Modern Foreign Languages
Diabetes UK - Informing patients
Emergency multilingual phrasebook
EQUIP information, support and other resources for UK patients in languages other than English
Food Standards Agency - Publications in minority languages
Great Ormond Street Children's Hospital & The Institute of Child Health
HARP - Health for asylum seekers and refugees
HIEL - Resource Development Service
Immunisation
In your language IDEAS - Victorian Government Health Information, Australia
Language Translations, software localization, online translation, website localization, technical writing
Leaflets - Patient Information Bank
Meningitis Research Foundation Information in other languages
Multikulti
Muslim Health Network

myPIL Resource - The Largest online multi-lingual patient information resource in Europe

Nafas Bangladeshi Drugs Project
Naz - WRITTEN RESOURCES
NHS Direct confidential translation service
NHS Ethnic non-English languages

NSW Health - Multicultural Health Communication Service Home Page

Parenting and Child Health - Resources - Multicultural health
Patient UK - Translated Patient Information Leaflets - Patient.co.uk
Queensland Gov. - Multicultural Health Resources
Rape victims - Sapphire Home Page
Refugeeaccess.info - Information for asylum seekers and refugees
Sounds Healthy
Suicide and depression
Sussex Interpreting Services (SIS)
Tackling drugs Diversity Toolkit
The Diabetic Foot
The Newham Language Shop Information Site - Bridging the Language Gap
The Stroke Association - Publications
Tower Hamlets PCT
Trying for a baby

SPIRAL: Selected Patient Information Resources in Asian Languages

The Yamada WWW Language Guides

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